A few years ago, Jayden started experiencing memory loss. It affected his school work and resulted in him going from straight A's to failing every class. He was evaluated by a psychologist and was diagnosed ADHD. Several months after he was placed on medication to help improve his memory loss, his grades started coming back up. Shortly later, Jayden started vomiting randomly. I took him to see his pediatrician and we were told it was side effects from the prescription he was on for ADHD. As time went by, his symptoms increased and he started having balance problems and his ear started to hurt. I took him to the ER and was told he had an ear infection. I didn’t accept it because I knew it was more than that. They sent us home with some antibiotics. The next day he came home from school limping. It was then that I couldn’t listen to these doctors anymore, I went straight to his pediatrician and demanded for CT scans and blood work. The doctor was kind and provided me with orders for MRI and CT scan and I booked an appointment the next day at Texas Children's Hospital. November 8th, 2023 was the day our lives changed forever. Surgery was scheduled immediately because the tumors had already spread to his spine. The goal was to remove as much as they could in his brain and kill the rest with radiation and chemotherapy.
The day Jayden was diagnosed with Medulla Blastoma was the worst day of our lives. The terror and absolute loss of control that comes with a diagnosis is something I don’t wish on anyone. Trying to be your child’s advocate, understanding all the medical information, maintaining schedules for treatment, the sleepless nights in the hospital and at home , time away from my other kids. I almost thought I was going to end up in the psych ward because I was losing my mind. Being a widow with 4 kids and no family around is a nightmare. But thank God for my church family who stood by us through it all. And God who never left our side and made a tough journey easy for us. Jayden used to be a track star and he loved to play soccer. He is loved by his classmates and everyone around him. Now the treatments have come to an end andJayden is looking forward to running again and playing soccer.